rospedРоссийский педиатрический журнал имени М.Я. СтуденикинаM.Ya. Studenikin Russian Pediatric JournalФГАУ «НМИЦ здоровья детей» Минздрава России10.46563/1560-9561-2021-24-6-414-418cgppslrosped-396Research ArticleСОЦИАЛЬНАЯ ПЕДИАТРИЯSOCIAL PEDIATRICSКачество жизни детей с расстройствами аутистического спектраQuality of life for children with autism spectrum disordershttps://orcid.org/0000-0002-1257-2212ВинярскаяИрина ВалериевнаVinyarskayaIrina V.

Доктор мед. наук, проф. РАН, зав. лаб. социальной педиатрии и качества жизни ФГАУ «НМИЦ здоровья детей» Минздрава России

e-mail: vinjarskaya@nczd.ru

MD, PhD, DSci., Professor RAS, Head of the Laboratory of social paediatrics and quality of life of the National Medical Research Center for Children’s Health, Moscow, Russian Federation

e-mail: vinjarskaya@nczd.ru

vinjarskaya@nczd.ruЛашковаАнна ВалерьевнаLashkovaAnna V.

Канд. мед. наук, науч. сотр., зав. отд-нием расстройств аутистического спектра и других психических расстройств детского возраста

e-mail: lashkova.av@nczd.ru

lashkova.av@nczd.ruhttps://orcid.org/0000-0002-8750-9285ЧерниковВладислав ВладимировичChernikovVladislav V.

Канд. мед. наук, начальник методического аккредитационно-симуляционного центра

e-mail: chernikov@nczd.ru

chernikov@nczd.ruhttps://orcid.org/0000-0001-6313-3810ТерлецкаяРимма НиколаевнаTerletskayaRimma N.

Доктор мед. наук, проф., гл. науч. сотр. лаб. социальной педиатрии и качества жизни

e-mail: rterletskaya@mail.ru

rterletskaya@mail.ruhttps://orcid.org/0000-0002-9562-3774КузенковаЛюдмила МихайловнаKuzenkovaLyudmila M.

Доктор мед. наук, проф., начальник Центра детской психоневрологии

antonova@nczd.ruhttps://orcid.org/0000-0002-1660-3346АнтоноваЕ. В.AntonovaElena V.

Доктор мед. наук, заместитель директора по научной работе, ФГАУ «НМИЦ центр здоровья детей» Минздрава России

e-mail: antonova@nczd.ru

noemail@neicon.ruФГАУ «Национальный медицинский исследовательский центр здоровья детей» Минздрава РоссииNational Medical Research Center for Children’s Health202120022024246414418Copyright © Винярская И.В., Лашкова А.В., Черников В.В., Терлецкая Р.Н., Кузенкова Л.М., Антонова Е.В., 20242024Винярская И.В., Лашкова А.В., Черников В.В., Терлецкая Р.Н., Кузенкова Л.М., Антонова Е.В.Vinyarskaya I.V., Lashkova A.V., Chernikov V.V., Terletskaya R.N., Kuzenkova L.M., Antonova E.V.Данная работа распространяется под лицензией Creative Commons Attribution 4.0.This work is licensed under a Creative Commons Attribution 4.0 License.https://www.rosped.ru/jour/article/view/396

Качество жизни является важной составляющей информации о детях с нервно-психическими заболеваниями, в том числе с расстройствами аутистического спектра (РАС).

Целью работы стала оценка качества жизни детей с РАС.

Материалы и методы

Материалы и методы. Обследовано 52 пациента в возрасте 5–6 лет с РАС. Группу сравнения составил 51 условно здоровый ребёнок соответствующего возраста и пола. Качество жизни оценивалось путём анкетирования родителей пациентов с помощью русскоязычной версии для детей 5–12 лет опросника Health Utilities Index. Статистический анализ осуществляли с помощью пакета программы «SPSS v.26.0» («StatSoft Inc.»).

Результаты

Результаты. Качество жизни детей с РАС оказалось существенно снижено по сравнению с показателями здоровых детей за счёт аспектов «Речь», «Когнитивные способности», «Эмоции». В то же время родители пациентов реже отмечали наличие боли. Определены уровни нарушения функционирования по каждому аспекту качества жизни.

Заключение

Заключение. Установлены особенности нарушений качества жизни у детей с РАС, которые позволяют получить более полную картину заболевания для совершенствования медицинской помощи детям этой категории.

Участие авторов

Участие авторов:Винярская И.В., Кузенкова Л.М.  — концепция и дизайн исследования;Лашкова А.В. — сбор и обработка материала;Черников В.В., Терлецкая Р.Н. — статистическая обработка;Винярская И.В., Лашкова А.В. — написание текста;Антонова Е.В. — редактирование.Все соавторы — утверждение окончательного варианта статьи, ответственность за целостность всех частей статьи.

Финансирование

Финансирование. Исследование не имело финансовой поддержки.

Конфликт интересов

Конфликт интересов. Авторы заявляют об отсутствии конфликта интересов.

Поступила 22

Поступила 22.11.2021Принята в печать 17.12.2021Опубликована 29.12.2021

Quality of life is an essential component of information about children with neurodevelopmental disorders, including autism spectrum disorders. The purpose of the present study was to assess the quality of life of children with this pathology.

Materials and methods

Materials and methods. Fifty-two 5–6 year patients with autism spectrum disorders were examined at the clinical and diagnostic centre of the Federal State Autonomous Institution «National Medical Research Center for Children’s Health» of the Ministry of Health of the Russian Federation. The comparison group was fifty-one healthy children matched for age and gender. Quality of life was assessed by interviewing patient parents using the Russian-language version for 5–12 years children of the Health Utilities Index (HUI). Statistical analysis was performed using the «SPSS v.26.0» («StatSoft Inc.»).

Results

Results. The quality of life of children with autism spectrum disorders turned out to be significantly lower than the scores of healthy children due to the aspects of «Speech», «Cognition», «Emotion». At the same time, parents of patients were less likely to note the presence of pain. Levels of disability categories are determined for each attribute of quality of life.

Conclusion

Conclusion. Presented features of violations of quality of life in children with autism spectrum disorders allow suggesting a complete picture of the disorders to improve the medical care of these patients.

Contribution

Contribution:Vinyarskaya I.V., Kuzenkova L.M. — concept and design of the study;Lashkova А.V. — collection and processing of material;Chernikov V.V., Terletskaya R.N. — statistical processing;Vinyarskaya I.V., Lashkova А.V. — writing of the text;Antonova E.V. — editing.All co-authors — approval of the final version of the article, responsibility for the integrity of all parts of the article.

Acknowledgement

Acknowledgement. The study had no sponsorship.

Conflict of interest

Conflict of interest. The authors declare no conflict of interest.

Received

Received:  November 22, 2021Accepted: December 17, 2021Published: December 29, 2021

 

 

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The authors declare that there are no conflicts of interest present.