Satisfaction of parents (legal representatives) with the quality of medical care provided to their disabled children

The aim is to identify parents’ (legal representatives’) satisfaction with the quality of medical care provided to their disabled children to improve this type of service further.

Materials and methods. A sociological survey was conducted of 506 legal representatives of minors (aged from birth to 17 years) with the status of a disabled child. The study design is single-center, non-randomized, uncontrolled.

Results. An analysis of the living conditions of a disabled child in the family, the parents’ assessment of his health status, the problems arising in the registration of disability, in the provision of medical and rehabilitation assistance, and issues of medical and social support made it possible to determine the position of this part of the child population in current legal and medical and social conditions. The main problems were the collection of a large number of documents when registering a disability, a long wait for the day of examination, the remoteness of the medical and social examination bureau, the lack of specialist doctors, problems with obtaining subsidized drugs, the lack of consideration of the individual needs of the child when conducting unique rehabilitation programs, the need to apply at the same time to various organizations and departments, violation of rights in the provision of medical services to a disabled child.

Conclusion. The obtained information is very significant for further improving the provision of medical and social assistance to disabled children and children with disabilities. The main task today is to develop mechanisms for implementing the declared rights and freedoms of persons with disabilities, the obligations assumed by the State concerning them.

Contribution:
Fisenko A.P., Terletskaya R.N. — concept and design of the study;
Alexeeva E.I., Basargina E.N., Kazakova K.A., Murashkin N.N., Surkov A.N., Tsygin A.N., Chomahidze A.M., Opryatin L.A. — collection and processing of material;
Chernikov V.V. — statistical processing;
Terletskaya R.N., Vinyarskaya I.V. — writing of the text;
Antonova E.V. — editing.
All co-authors — approval of the final version of the article, responsibility for the integrity of all parts of the article.

Acknowledgment. The study had no sponsorship.

Conflict of interest. The authors declare no conflict of interest.

Received: March 26, 2021
Accepted: April 22, 2021
Published: May 14, 2021

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